The ACcess to TImely Formal (ACTIF) care project (2014-2017) is a joint programming European dementia research project. It aimed to analyse the pathways to care for people with dementia and their families, in an attempt to better understand the reasons for inequalities in access to healthcare. In collaboration with Prof. Dr. A. Wimo at the Karolinska Institutet we focused on the health-economic effects of unmet needs on health-related quality of life and resource use. Results indicated a potential to improvement quality of life if unmet needs would be prevented. We are currently attempting to follow-up our participants for a longer time period to assess the long-term effects of untimely access to care on the use of care resources and quality of life.
The study protocol has been published and various manuscripts are being drafted.